Advocacy
Help us make Alpha-gal impossible to ignore.
Hundreds of thousands of Americans live with AGS — many undiagnosed. Together, we can change that.
Why It Matters
AGS is underdiagnosed and underfunded.
Despite affecting an estimated 450,000+ Americans, Alpha-gal Syndrome remains largely unknown — even among healthcare providers. Many patients wait years for a correct diagnosis.
Research funding is limited. Awareness among primary care physicians is low. And food labeling laws don't yet require disclosure of alpha-gal-containing ingredients.
Advocacy changes this. Every conversation, every shared story, every letter to a representative moves the needle toward better care, better research, and better lives for people with AGS.
Get Involved
Ways to make a difference.
Share your story
Personal stories are the most powerful advocacy tool. Share your diagnosis journey on social media, with your doctor, or with us.
Educate your doctor
Print our physician fact sheet and bring it to your next appointment. You may be the first AGS patient they've ever seen.
Contact your representatives
Ask your senators and representatives to support funding for tick-borne illness research and improved food labeling.
Spread awareness
Follow us on social media and share our content. Every share reaches someone who might finally have an answer.
Contact Us
Get in touch.
Have a question, a story to share, or want to collaborate? We'd love to hear from you.